Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Thursday, February 09, 2012
Hundred People Search update
I have a Hundred People Search update! We are very behind where we usually are for the year. Part of this is because we always pick up new members at the Puerto Rico conference, and there was a kind of glitch this year. This week, however, we have added three new people with HPS to the registry. This puts us at 77 left to go before conference.