Skip to main content

Scholarship opportunity for an undergrad with albinism

I just got this e-mail from NOAH - the National Organization for Albinism and Hypopigmentation. I'm am thrilled to pass it along!

NOAH's Michael J. McGowan Leadership Scholarship Award

2012 Application is now Available!


The Michael J. McGowan Leadership Scholarship Award was established in 2008 on behalf of the National Organization for Albinism and Hypopigmentation (NOAH) to recognize leadership and empower young people with albinism. NOAH will award one scholarship annually to a NOAH member with albiism residing in the U.S. or Canada who is enrolled in an undergraduate program at an institution of higher education in the U.S. or Canada. The intent is to enhance educational opportunities for students with albinism while celebrating dedication and outstanding leadership qualities similar to those exhibited by NOAH's current and past leaders. The 2012 scholarship award will be $3,000.


To apply, complete the online application then submit the following:

•Your personal statement (500 words or less)

•An eye report documenting a diagnosis of albinism

•At least two (2) letters of recommendation from non-family members

•Your academic transcript (including SAT/ACT scores, if applicable)

•A letter of acceptance to or proof of enrollment at an institution of higher learning


Application materials for the 2012 McGowan Scholarship must be RECEIVED by May 1, 2012.

Send all application materials to:

NOAH McGowan Scholarship

PO Box 959

East Hampstead, NH 03826-0959

Fax: 800-648-2310



Please contact NOAH's Scholarship Committee with any questions at or 800-473-2310 (U.S. and Canada).

Applicants will receive notification of the award committee's decision on or around June 1, 2012.



Popular posts from this blog

The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.

Just waiting: A continuation of my transplant story…

Photo: This is me the week before the transplant. The one with the roses was taken on Valentine's Day. My sister-in-law gave the roses Ryan had brought her to me.

To be honest, I don’t remember much about the time I spent in the hospital before my transplant. I’m not sure if that’s because it was pretty boring and routine, so there’s just not much to say – or if it is some kind of self-preservation maneuver my brain has done to shield me somehow.

After the big rush to get to the clinic early, we spent several hours in the waiting room with my luggage as if we were waiting for an airplane at the airport. It turns out the big rush was due to a hospital policy that the clinic couldn’t request a bed for me until I was actually there. The hotel Inova Fairfax Medical Center was packed to the gills, and they wanted my name on the waiting list. It was late afternoon before a bed became available. Looking back, I’m amazed at how calm we were sitting there. Perhaps we were compartmentalizing…

Family hunting

I’ve always had an interest in genealogy. I haven’t done anything about it really. Never had the time I guess. Perhaps it’s because I’ve always been a fan of studying history. Finding ancestors somehow feels like a personal connection to the past, as if the DNA populating my cells has some sort of time travel awareness of what has gone before. Of course that’s crazy.

When I was diagnosed with Hermansky-Pudlak Syndrome my interest in my roots, especially my Puerto Rican roots, intensified. Maybe it was the realness of mortality or the connection between my newfound fascination with genetics and how it connected me to my family history.

For years I’ve thought about whomever in my family tree might have had HPS. They would have lived so long ago that they wouldn’t have known what HPS was. It wasn’t really identified as such until 1959. My grandma Cockerill, whose father was from Puerto Rico, talked about relatives in Puerto Rico she heard about as a child that had died of tuberculosis. C…