Saturday, January 14, 2012

Resource for those with bowel disease

The Crohn’s and Colitis Foundation has set up an online archive of Webinars about living with bowel problems. Many of the Webinars are available in English and Spanish. While CCFA does not provide any information about Hermansky-Pudlak Syndrome (it would really be nice if they would as for us, it can literally be life and death), you may find a lot of useful information here. Please consult with your own physician who understands your HPS before making any changes to your care. Here’s the link:

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