Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Monday, January 02, 2012
Getting together with some CHS friends
While I was in Seattle, I was lucky to get together with some friends from the Chediak-Higashi Association. They came to New York last year for the first CHS conference, and they're doing an awesome job of trying to raise money to have another CHS conference. They are awesome! These pics are from our time at the Everett Children's Museum.