Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Sunday, October 09, 2011
Hundred People Search Update
This week we added two new HPS'ers to the patient registry. This means we've got 86 left to find on this year's Hundred People Search. Keep up all the outreach gang. Encourage anyone you know with HPS to register with the HPS Network. We need them to prove that we're out here to the researchers!