We are slowly working our way through some of the new people leads from Puerto Rico. A number of them are still waiting to hear about their diagnosis. We have been able to confirm three new people so far though, so that puts us at 85 to go on the Hundred People Search! Please keep up the outreach. I'm finding some HPS friends on facebook that are not registered with us. Please, if you have HPS, register with the Network so we can count you. There's no fee or obligation. We just need to prove to the world that we're out here!
I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.