Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Saturday, September 03, 2011
Hundred People Search update
This week we added a new HPS'er to the HPS patient registry. This puts us at 87 HPSer's yet to find on this year's Hundred People Search (HPS). We are admittedly tracking behind where we usually are in August, but we still have all the conference registrations to process from the Puerto Rico conference. And, we also have a number of people in testing now. Still, keep up the good work with outreach - we don't want to leave anyone behind!