Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Thursday, September 08, 2011
HPS supporter runs triathlon to help HPS research
Leslie Feldman-Rumpler, a friend of HPS’er Rebecca Rosado, ran the Cohasset Triathlon in Boston in honor of Rebecca. Leslie says she is inspired by Rebecca’s experiences as a successful lung transplant recipient. She ran the event to help raise money for continued research into the pulmonary fibrosis of HPS. Thank you Leslie!