The following link is for a Webcast given last week. It was co-hosted by the Coalition for Pulmonary Fibrosis and the American Thoracic Society. It's about clinical trials for pulmonary fibrosis.
I must preface this for those with Hermansky-Pudlak Syndrome. For reasons I must admit I don't always understand, we are usually excluded from these trials (a debate for another time). However, this news is very exciting because if any of these drugs shows promise, it could very likely be used to treat us as well.
I find it hopeful just to know there really are people working on treatments every day!
This webinar also explains how pulmonary fibrosis works very well.