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HPS Network supports maintaining Title V funding

The Hermansky-Pudlak Syndrome Network joined with other patient advocacy groups at Gene Day on the Hill to ask Congress to maintain funding levels for Title V Maternal and Child Health Block Grants. These federal grants support programs such as infant screening, prenatal and postnatal care for needy moms, child immunization programs, nutrition and dental education as well as programs for kids with special health care needs.



Funding for the program has fallen 10 percent during the past seven years. At the same time, because of the soft economy, more mothers and children are seeking the assistance of programs funded by Title V.






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