Monday, August 01, 2011
Hermansky-Pudlak Syndrome Network launches Yahoo! group for young adults
The Hermansky-Pudlak Syndrome Network has launched a new Yahoo! group focusing on the interests and needs of the HPS community between the ages of 18 and 30. Those with HPS, their siblings, interested supporters or the children of those with HPS are welcome to join the group. To join, send your request to Heather Kirkwood, firstname.lastname@example.org. Please put HPS Groups in the subject line so Heather doesn’t mistake your request for spam.