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RARE - the film

We are so excited that a trailer of the film RARE is now available on YouTube. This film follows Donna Appell and the journey of the HPS Network during our drug trial several years ago. But, the story is wider than that. It is an experience shared by rare disease groups across the country and the world, each trying to encourage research and find treatments. It's alsos the story of medical research and how places like the NIH are so important to our country. You can see the trailer below.

Please don't just watch - go to YouTube http://youtu.be/kC6j-Of55rw and like the video. Even better, leave a comment. It would be awesome if we could demonstrate a grassroots effort to get the film attention. To do it, we have to raise money, of course. Help us "make the sale" by showing a wide interest in the film.
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