Tuesday, June 28, 2011

The Jewish Guild kicks off a phone-in support group for English-speaking parents of HPS kids

The Jewish Guild for the Blind, in cooperation with the Hermansky-Pudlak Syndrome Network, will launch a new call-in support group for English-speaking parents of children with Hermansky-Pudlak Syndrome. Parents of kids of all ages and concerns are welcome to participate. Come to learn something new, get a little support or offer your experience to the parent of a newly diagnosed child.

The group will kick off July 5th and be held once a month, unless demand is greater. To sign up, contact Carmen Camacho, (508) 395-7523, or e-mail: camachoc2000@yahoo.com.

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