Marisol Goico, a student at the Borough of Manhattan Community College, turned living with HPS into a class project for her Fundamentals of Speech class. She gave a presentation about the medical aspects of the disorder, as well as her personal experiences as a person with HPS. Go Marisol! Grassroots outreach like this helps to build awareness of HPS. “The students asked a lot of questions. I felt like they were really interested,” says Goico.
Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
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