Thursday, May 26, 2011

Chediak-Higashi Syndrome family featured in Special Families Magazine

Special Families Magazine, a brand-new Canadian magazine for families with kids that have special needs, featured an article by Selena Tenthoeve, the mother of a child with Chediak-Higashi Syndrome. Selena shared the story of her now five-year-old son Riley, who has CHS. She tells about his birth, diagnosis and journey through two bone marrow transplants. Check out the article (on pages 12 – 13) at:

P.S. Yesterday a new blog reader who has a child with CHS left a message on the blog. If you're still out there and reading, please e-mail me at: We'd love to be able to reach you!

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