Special Families Magazine, a brand-new Canadian magazine for families with kids that have special needs, featured an article by Selena Tenthoeve, the mother of a child with Chediak-Higashi Syndrome. Selena shared the story of her now five-year-old son Riley, who has CHS. She tells about his birth, diagnosis and journey through two bone marrow transplants. Check out the article (on pages 12 – 13) at: http://issuu.com/specialfamiliesmag/docs/sfmmay2011
P.S. Yesterday a new blog reader who has a child with CHS left a message on the blog. If you're still out there and reading, please e-mail me at: firstname.lastname@example.org. We'd love to be able to reach you!