Tuesday, March 08, 2011

Webinar on pulmonary fibrosis

This is another informational tidbit I'm passing along. The Pulmonary Fibrosis Foundation is hosting an event on Pulmonary Fibrosis that they are making available as a Webinar. It will cover diagnosis, treatments, and lung transplantation.

This is NOT like the Webinar we just had with the NIH. They will likely NOT deal with the pulmonary fibrosis of HPS specifically, which can be a bit different. (For example, lung biopsy for diagnosis is generally not recommended.) However, you might learn some tips or tricks that would be useful.

Once again, just as with the GI Webinar from the Cleveland Clinic - if you particpate, please help us generate awareness that patients with HPS ARE part of the pulmonary fibrosis community. Please identify yourself as someone with HPS when you ask a question.

Here's the info:
The Pulmonary Fibrosis Foundation will be providing a live webinar of Understanding Pulmonary Fibrosis: A Seminar for Patients, Caregivers, and Families, presented by UC Davis Medical Center, UC San Francisco Medical Center, and Stanford University Medical Center on March 12, 2011 from 9:30am CST to 2:30pm CST.

The Seminar will feature leading experts in lung disease who will address topics including:

diagnosis of pulmonary fibrosis

management issues

current and future research

lung transplantation

pulmonary rehabilitation

oxygen therapy

available resources for patients and families

The webinar will be live from 9:30am to 2:30pm PST and will cover the entire programming agenda of the seminar. View the entire agenda and list of speakers on our website or download the flier.

To participate in the webinar use the following URL:


The webinar can be viewed in Windows Media Player and there may be issues with Windows Media browser integration for Mac users. If you have trouble opening the link directly in a browser, please try pasting it directly into the Windows Media Player. The recording begins at 9:30am PST. A test signal can be expected to be present by 8:30am PST before the event.

Participants will be given the opportunity to have their questions answered by the experts during the webinar. Please submit your questions to webinar@pulmonaryfibrosis.org prior to the webinar.

If you are unable to attend the webinar, sign up for our IPF Summit 2011 in December. The seminar is for both medical professionals and patients, caregivers, and family members and will cover a variety of topics important to the PF community. Register for the Summit at www.ipfsummit.org.


Daniel Rose, MD

President and CEO

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