Thursday, February 17, 2011

Mangiafico runs to raise money for the HPS Network

Liliana Mangiafico plans to spend 2011 running marathons to raise money for the Hermansky-Pudlak Syndrome Network. So far, she’s run one race and raised $160, but her goal for the year is $2,000.

Mangiafico is an attorney for Advocates, a non-profit in the Boston area. She is a co-worker of HPS’er Carman Camacho, and through Carmen, got to know the stories of many people with HPS. She has helped several HPS families apply for social security benefits.

Mangiafico was especially touched by the stories of those trying to obtain lung transplants. “I can't imagine what it is to live with the fear my lungs will stop working. That is how I thought that through my races and using my lungs hard to honor those who have lost the fight and the assist those waiting for a transplant I could help,” says Mangiafico. She hopes to raise money to help HPS research so that someday, HPS’ers will no longer need lung transplants.

Her fundraiser Website is:

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