Saturday, February 12, 2011

Make a video for Rare Disease Day!

Stand up and be counted! Let the world know there are people out there with Hermansky-Pudlak Syndrome, Chediak-Higashi Syndrome, or even in a diagnositc limbo land. Make a short video telling something about yourself, your disorder and your life. NORD is collecting these videos to help publicize Rare Disease Day. It's a chance to bring some attention to HPS, CHS and our "diagnosic limbo" folks. Also, NORD gets a $10 donation for every video submitted!

If you make a video, please also share it with the HPS Network!

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