Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Saturday, January 22, 2011
Hundred People Search Update
Today we added a new person to the HPS patient registry. Since it is still Friday, they count for this week as well - that puts us at half way there - 50 to go! While this is down from last year, we are only six new people away from having 1,000 people with HPS on our patient registry from around the world!