We are looking for a few unique situations among HPS'ers. It may be something, it may not. Do you have HPS, know your gene type, know that you are not a 1 or a 4 - and yet have been treated for Crohn's Disease? I'm aware of one type 6. I thought there were some three's out there with Crohn's, but can't seem to locate them now.
Also, do you have HPS types 1, 2 or 4 and have a close relative with idiopathic pulmonary fibrosis? (mother, father, aunt, uncle or grandparent?) If so, would you mind e-mailing me at firstname.lastname@example.org? Thanks!