Wednesday, January 26, 2011

Attn: HPS'ers - do you know if?????

We are looking for a few unique situations among HPS'ers. It may be something, it may not. Do you have HPS, know your gene type, know that you are not a 1 or a 4 - and yet have been treated for Crohn's Disease? I'm aware of one type 6. I thought there were some three's out there with Crohn's, but can't seem to locate them now.

Also, do you have HPS types 1, 2 or 4 and have a close relative with idiopathic pulmonary fibrosis? (mother, father, aunt, uncle or grandparent?) If so, would you mind e-mailing me at Thanks!

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