Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Thursday, December 16, 2010
Hotel room block is open for the HPS/CHS conference and the NOAH Mini Conference
Book your room now! If you plan to attend the 18th Annual HPS Network Family Conference in Uniondale, NY it's time to book your hotel room. There's another large group in the hotel at the same time, so book now to ensure you have a room. The hotel rate is $139.00 plus tax. Tell them you are with the HPS Network to get the rate. The hotel number is: 516-794-3800 or 1-800-832-6255.