Tuesday, November 30, 2010
Above are some very special photos. Pictured are Maria G, Carmen, Chris and Rebecca. Maria G is in the last stages of fighting the pulmonary fibrosis of Hermansky-Pudlak Syndrome. The HPS'ers on the HPS Adults Yahoo! Group wanted to send their love and support, and a hug in a tangible way, so many of them made quilt squares that our HPS friend Letty sewed together. This is the group that was able to present Maria G with the quilt. I'd also note that Rebecca, in the blue, is one of our transplant success story superstars. She's now helping other HPS'ers in the transplant process and sharing her story with them. I know it has meant a lot.