Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Monday, November 08, 2010
NOAH and the HPS Network partner for American Academy of Pediatrics
I posted a story about this a while back, but I hadn't had a chance to pull the photos off my camera. These are from the joint NOAH/HPS Network booth at the American Academy of Pediatrics. We used the HPS cookie demonstration to pull in the docs, but the NOAH booth. We handed out flyers about NOAH, the book about raising a child with albinism and HPS brochures.