Here's another one I'm passing along. The information is sketchy, but if you're interested, you can run it down. I have no doubt many students with Hermansky-Pudlak Syndrome or Chediak-Higashi Syndrome would meet the criteria for a chronic illness, even though our disorders aren't listed. It's just because they are so rare. Good Luck!
Chronic Illness Initiative at DePaul University
The Chronic Illness Initiative (CII) provides access to higher education for students who have chronic illness. Students who struggle with illnesses that unpredictably increase and decrease in severity such as asthma, chronic fatigue syndrome, lupus, and rheumatoid arthritis, or illnesses with frequent hospitalizations such as cancer or heart disease, may have found it difficult, if not impossible, to meet the requirements of a conventional college program.