The National Organization for Albinism and Hypopigmentation (NOAH) and the Hermansky-Pudlak Syndrome Network (HPS Network) teamed up on an outreach mission in October at the American Academy of Pediatrics meeting, held in San Francisco.
The two organizations split the cost of a booth on the trade show floor at the meeting to get the word out to pediatricians about the services and support NOAH offers families with children that have albinism. The HPS Network was on hand to tell pediatricians about HPS, and encourage them to screen their patients with albinism for the syndrome.
NOAH Executive Director Mike McGowan and HPS Network Vice President Heather Kirkwood were on hand for the duration of the meeting. NOAH members Jerrylin Ankenman, Carl Washington and Trisha Ricci, all from the Bay area, also volunteered at the booth. They shared their experiences with the pediatricians that came by and handed out NOAH and HPS Network literature.