HPS Network members in the New England area exhibited at the Back-to-School fair in Bridgeport, CT in August. Emilio Ortiz, Jenny Ortiz, Carmen Camacho, Frankie Feliciano and Gabe Feliciano were on hand to man the table and answer questions about Hermansky-Pudlak Syndrome. The fair was held in a heavily Puerto Rican area and several attendees picked up brochures to share with family and friends affected by albinism. Other exhibitors at the event included organizations offering behavioral and mental health services, after school programs, health and safety programs as well as many other community resources.
I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.
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