Skip to main content

Card fundraiser – the fun of old-fashioned mail




Do you use family photos on your Christmas cards? Do you plan to send out baby announcements soon? Or maybe you took a fantastic photo on your summer vacation that would be perfect for a greeting card? Now you can upload your own photos, design your own cards and 33 percent of the purchase price will go to the HPS Network. Go to www.hpsphotocards.com to order! (You have to go to the NanoSnap site through this url or we won’t get credit for the sale.)

Would you like to help those with the Chediak-Higashi Syndrome type of albinism kick off their first ever CHS-branded fundraiser? They are raising money in hopes that one day they’ll be able to have their own conference. You can purchase cards that will benefit the CHS Association at: www.chsphotocards.com.

So, that’s the sales pitch – now for the mushy bloggish stuff.

I don’t know why, but I’m a sucker for stationary. I hardly ever write an old-fashioned letter using actual pen and paper, yet somehow I get drawn to pretty cards, pretty paper and pretty envelopes. Why is that? I hardly ever even manage to get Christmas cards out, but I’ve got an assortment of them from failed attempts.

Recently, I do find I’m sending more cards that actually require a stamp. I keep a supply of blank cards around because it isn’t easy for me to drive to the store when I need a birthday card, a get-well card or such thing. So, I tend to go for blank cards so that I can write my own messages. I was anxious to get this fundraiser off the ground because I wanted to order cards with a photo I took in Puerto Rico on them. It’s the photo above. I can hardly wait for the cards to arrive!!!!

Comments

Popular posts from this blog

Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for...

Some good news about Pirfenidone

Below is a press release from Intermune, the company that makes Pirfenidone. They have essentially reviewed the various clinical trials going on, and decided that Pirfenidone is safe and well tolerated. That would pretty much go along with what we've observed in the HPS community as well. We have a few folks that have been on the drug since the late 90s and continue to do well. Of course, as a journalist, I do have to say consider the source - but at the same time, as someone in a Pirfenidone trial, it's good to know. Results of Comprehensive Safety Analysis of pirfenidone In IPF Patients Presented At European Respiratory Meeting - Analysis shows safety and tolerability of pirfenidone across four clinical trials - VIENNA, Sept. 14 /PRNewswire-FirstCall/ -- InterMune, Inc. (Nasdaq: ITMN ) today announced that the results of a comprehensive review of safety data from four clinical studies were presented at the 2009 European Respiratory Society Annual Congress in Vienna, Austria...

The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.