Contact: Donna Appell, President and Founder, HPS Network, (516) 922-4022 or e-mail: dappell@hpsnetwork.org.
Date: Aug. 8, 2010
FOR IMMEDIATE RELEASE
HPS Network supports conference on experimental lung disease research
Oyster Bay, NY – The Hermansky-Pudlak Syndrome Network is a platinum-level sponsor of “The Lung Epithelium in Health and Disease Conference” to be held Aug. 8 – 13, 2010 in Saxtons River, Vt. The conference is one of many held by the Federation of American Societies for Experimental Biology (FASEB).
The conference’s presenters include some of the nation’s leading researchers specializing in investigating the mechanisms of pulmonary fibrosis. The event is being organized by Dr. Michael Beers (who attended the 2010 HPS Network New York Conference), Dr. Rama Mallampalli and Dr. Barry Stripp. The agenda includes several presentations on Hermansky-Pudlak Syndrome. HPS researchers Dr. Susan Guttentag and Dr. Lisa Young will be presenting and participating in the conference.
The conference is an opportunity for researchers not only to present cutting-edge discoveries, but also to network and brainstorm about future avenues of research. Continuing Medical Education credits will be available for conference attendees.
“We are pleased to do what we can to support this event,” says Donna Appell, President and Founder of the HPS Network, “Our members are fighting hard to find a cure for pulmonary fibrosis. This is one way we can help the brilliant researchers who one day will find the answer.”
Hermansky-Pudlak Syndrome is a form of albinism that, in addition to decreased pigment in the skin, hair or eyes and visual impairment, also causes a bleeding disorder. About 15 to 30 percent of people with HPS experience a digestive problem much like Crohn’s disease. HPS subtypes 1, 2 and 4 also cause pulmonary fibrosis.
The HPS Network has promoted research and supported families affected by this syndrome for the past 17 years. The HPS Network maintains an informational Website, toll-free number where those affected can seek help, a patient registry an active online community and produces educational conferences for families in New York and Puerto Rico.
To learn more about the HPS Network visit: www.hpsnetwork.org.
Date: Aug. 8, 2010
FOR IMMEDIATE RELEASE
HPS Network supports conference on experimental lung disease research
Oyster Bay, NY – The Hermansky-Pudlak Syndrome Network is a platinum-level sponsor of “The Lung Epithelium in Health and Disease Conference” to be held Aug. 8 – 13, 2010 in Saxtons River, Vt. The conference is one of many held by the Federation of American Societies for Experimental Biology (FASEB).
The conference’s presenters include some of the nation’s leading researchers specializing in investigating the mechanisms of pulmonary fibrosis. The event is being organized by Dr. Michael Beers (who attended the 2010 HPS Network New York Conference), Dr. Rama Mallampalli and Dr. Barry Stripp. The agenda includes several presentations on Hermansky-Pudlak Syndrome. HPS researchers Dr. Susan Guttentag and Dr. Lisa Young will be presenting and participating in the conference.
The conference is an opportunity for researchers not only to present cutting-edge discoveries, but also to network and brainstorm about future avenues of research. Continuing Medical Education credits will be available for conference attendees.
“We are pleased to do what we can to support this event,” says Donna Appell, President and Founder of the HPS Network, “Our members are fighting hard to find a cure for pulmonary fibrosis. This is one way we can help the brilliant researchers who one day will find the answer.”
Hermansky-Pudlak Syndrome is a form of albinism that, in addition to decreased pigment in the skin, hair or eyes and visual impairment, also causes a bleeding disorder. About 15 to 30 percent of people with HPS experience a digestive problem much like Crohn’s disease. HPS subtypes 1, 2 and 4 also cause pulmonary fibrosis.
The HPS Network has promoted research and supported families affected by this syndrome for the past 17 years. The HPS Network maintains an informational Website, toll-free number where those affected can seek help, a patient registry an active online community and produces educational conferences for families in New York and Puerto Rico.
To learn more about the HPS Network visit: www.hpsnetwork.org.
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