Skip to main content

Health Update – am I losing my mind?

This is just a little health update for my personal records – as well as for the entire world I guess – you know, part of the documentation.

While I was at NIH Kevin upped my Advair, but told me to come down on the dose after about a month or so. This weekend I had some rather strange symptoms and I’m wondering if it was because of the steroids in the Advair? Who knows, maybe I’m just nuts.

I went through about two days of feeling very edgy or anxious for no good reason. It was as if every little thing made me jump or somehow made me feel irritated. I tried to go to Homers Saturday night to listen to the live music, but the mere voices of the people around me had the same grating affect as someone running their fingers down a chalk board. Intellectually I knew there was no good reason for this, but it’s how I felt. I had to leave.

I went home and could hardly stand to sit still. I couldn’t concentrate on anything. Finally I took one of the pills they gave me for the panic attacks I was having at work before I finally left. I haven’t taken one in a year, nor have I had a panic attack.

It must have helped me because I promptly fell asleep for about 15 hours.

Today I feel great. I did fall asleep this afternoon for no good reason. You’d think with all that sleeping I wouldn’t do that. I was trying to get ready to leave home and was rushing around and tripped over a chair and cut my foot. It was bleeding and I didn’t want to leave until it had stopped. I fell asleep holding pressure on it.

The other strange symptoms this weekend were that my joints were really aching more than even usual, and my tummy was crampy and upset.

The good news is today I feel just great!
Labels:

Comments

snoring solutions said…
You have said it very well. Keep going.
This is a fascinating post.Really enjoying your blog a great deal! Thank you.
2:03 AM
Post a Comment

Popular posts from this blog

Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for
1 comment
Read more

The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.
Post a Comment
Read more

Help for one of our newest HPS friends

As many of you know, I have a google alert set up for all sorts of key terms like albinism, pulmonary fibrosis etc. The following was posted on the blog of a friend of Melanie's. Melanie is one of our newest members of the Hermansky-Pudlak Syndrome family. Unfortunately, like so many she didn't know she had HPS and the lung disease sort of snuck up on her. Melanie will be 26 years old next week. Perhaps some of us would like to contribute to the fund set up to help her and her family for her birthday. Here's the post: Melanie Hernandez, beloved sister and daughter to Pete, Monique, Cookie, and Bugie, has been diagnosed with Pulmonary Fibrosis, a lung disease occurring in people with Hermansky-Pudlak Syndrome, a very rare disease.Hermansky-Pudlak Syndrome (“HPS”) is a genetic metabolic disorder. It is characterized by: Albinism, Vision Impairment, Bleeding Disorder, Inflammatory Bowel Disease and Lung Disease – Pulmonary Fibrosis. With the family’s research and the recollect
Post a Comment
Read more