Below is a press release from Intermune, the company that makes Pirfenidone. They have essentially reviewed the various clinical trials going on, and decided that Pirfenidone is safe and well tolerated. That would pretty much go along with what we've observed in the HPS community as well. We have a few folks that have been on the drug since the late 90s and continue to do well. Of course, as a journalist, I do have to say consider the source - but at the same time, as someone in a Pirfenidone trial, it's good to know. Results of Comprehensive Safety Analysis of pirfenidone In IPF Patients Presented At European Respiratory Meeting - Analysis shows safety and tolerability of pirfenidone across four clinical trials - VIENNA, Sept. 14 /PRNewswire-FirstCall/ -- InterMune, Inc. (Nasdaq: ITMN ) today announced that the results of a comprehensive review of safety data from four clinical studies were presented at the 2009 European Respiratory Society Annual Congress in Vienna, Austria...
This is Maryann Mulloy and Denise Miles, both of whom are long time HPS Network volunteers. They've helped out with conference since long before I even knew I had HPS. Often people wonder why we don't move the HPS Network conference around the country. There are several reasons, but perhaps one of the biggest ones is our volunteers. To keep the costs down we have an army of volunteers that have been with us for years. They know the system. They know the kids in child care. They know our members. They simply couldn't be easily be replaced by volunteers without that kind of connection to the very special needs of our members. They are simiply wonderful.
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