Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Monday, March 29, 2010
Congrads to Maria M!
A big congrads needs to go out to Maria M. She's been listed on the lung transplant list. It's been a long haul for her. She developed kidney issues and had to undergo a kidney biopsy before they'd agree to list her, a particularly bloody procedure. There were complications, but it all worked out. We are so thrilled for her. Please pray that her new lungs arrive soon and that she remains in good health to get them.