Skip to main content

Wrap for the Cure

I'm posting this message from Karen T. If anyone's in the Greensboro area and can help, I know she'd really appreciate it. You don't have to be an HPS'er to help - just willing to pitch in.

Hey gang,

If you live close to Greensboro, NC and would like to help the HPS Network earn some cash please let me know by Wednesday 10AM.

This is the challenge: Belk's Dept store at Four Seasons Town Center in Greensboro, NC is allowing nonprofits to earn extra Christmas money for wrapping people's gifts. We will be getting donations from Belk customers, and hopefully Belk will kick in a little extra. Not sure about Belk's kicking in, but I do know they are really nice to nonprofits.

You will be wrapping for, of course The HPS Network. If you can work any day or time between now and Dec. 24th PLEASE contact me like yesterday. However by 10am Wednesday will be fine. 336 954 3604.

I have already scheduled myself for Fri. Nov 27 noon to 4pm, Sun. Nov. 29 noon-7pm, Sun. Dec 6 noon-7pm, Fri. Dec 11, 7pm to close. My sister Denise and her husband have volunteered for Fri. Dec 18, 2pm to 4pm, My sister Joyce and I will work again on Sat. Dec 12 9am-1pm.

Not only is this a chance to make some cash, but it also gives us an inroad with Belk's which is a large chain on the east coast.

Thanks so much in advance,
Karen Tillman

Comments

Popular posts from this blog

Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for...

Some good news about Pirfenidone

Below is a press release from Intermune, the company that makes Pirfenidone. They have essentially reviewed the various clinical trials going on, and decided that Pirfenidone is safe and well tolerated. That would pretty much go along with what we've observed in the HPS community as well. We have a few folks that have been on the drug since the late 90s and continue to do well. Of course, as a journalist, I do have to say consider the source - but at the same time, as someone in a Pirfenidone trial, it's good to know. Results of Comprehensive Safety Analysis of pirfenidone In IPF Patients Presented At European Respiratory Meeting - Analysis shows safety and tolerability of pirfenidone across four clinical trials - VIENNA, Sept. 14 /PRNewswire-FirstCall/ -- InterMune, Inc. (Nasdaq: ITMN ) today announced that the results of a comprehensive review of safety data from four clinical studies were presented at the 2009 European Respiratory Society Annual Congress in Vienna, Austria...

The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.