Skip to main content

Health update

This is just a brief update for record keeping. I think I need to go get some blood work done. My sleep patterns are all out of wack, but even when I'm awake, I seem to only be productive about five hours a day. I get up at a normal time and fall asleep at the table, or at my desk. I don't feel sick, although my asthma and joints seem flared up. I just feel overwhelmingly tired. That's partly why I'm so behind on blogging!

Comments

Unknown said…
Heather, I am tired-lots! My body aches, but I just keep going, keep weight off and enjoy every moment.
童貞を奪ってみたい女性たちは、男性にとって「初体験」という一生に一度だけの、特別なイベントを共に心に刻み込むことを至上の喜びにしているのです。そんな童貞好きな女性たちと高級チェリーで最高のSEXをしてみませんか
困っています。 said…
最近寂しくて困っています。夜一人で寝るのが凄く寂しいです…隣で添い寝してくれる男性いませんか?見た目とか特に気にしません。優しくて一緒にいてくれる方大歓迎☆一緒に布団で温まりましょう♪shart.enamorado.de-me@docomo.ne.jp
副収入 said…
一晩の割り切ったお付き合いで副収入が得られるサイトのご案内です。アルバイト感覚での挑戦もできる、安心の無料登録システムを採用しておりますので、興味のある方は当サイトをぜひご覧ください
復活、スタービーチ!日本最大の友達探しサイトがついに復活、進化を遂げた新生スタビをやってみませんか?理想のパートナー探しの手助け、合コンパーティー等も随時開催しています。楽しかった頃のスタビを体験しよう

Popular posts from this blog

Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for

The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.

The blog is back, I hope

  What started as a way to share news about HPS and what it is like to live with Hermansky-Pudlak Syndrome has fallen apart badly! There are a lot of reasons for this. Some are related to health. Some are related to time. And some are related to mental health. Finally, the last obstacle was technical. I lost access to my blog. Every time I started to work on regaining access, something interrupted the process and I’d have to start all over again. Before you say it, I know. A blog is so old school. Haven’t you heard of a vlog Heather? Or maybe TikTok? I know my limits. I have a great face for radio. I’m not particularly eager to film myself. When I do, I feel I need to spend extra time putting on makeup or fixing my hair. Yet, often when I have the time to do something like this, it is early in the morning or late at night. I don’t want to “get ready.” I’m having a hard enough time squeezing this in without staging myself. Grin. I’m trying to start with small goals. Right now, I’m h