Skip to main content

Another story about life for people with albinism in Burundi

Albinos under Burundi police protection welcome Napoleon (age 1 week)

28 Oct 2009 09:18:00 GMT 28 Oct 2009 09:18:00 GMT ## for search indexer, do not remove
-->
Source:
International Federation of Red Cross and Red Crescent Societies (IFRC) - Switzerland
By Alexis Manirakiza in Ruyigi, Burundi
Website:
http://www.ifrc.org

Reuters and AlertNet are not responsible for the content of this article or for any external internet sites. The views expressed are the author's alone.



The picture shows Napoleon Ahishakiye, an albino baby born on Thursday 15 October 2009 and as far as anyone knows the first albino birth in a shelter, with his 18-year-old albino mother, Emelyne Banteyineza. (Photo: Alex Wynter/IFRC) (p-BDI003) Napoleon Ahishakiye, a healthy boy, was born on Thursday 15 October 2009 - as far as anyone knows the first albino birth in one of the shelters still scattered around the eastern Burundian province of Ruyigi, near the border with Tanzania.


After the occult-based killings began here in August last year, the Ruyigi local authorities had to resettle 60 albinos in secure locations the police could guard.
And there at least 20 remain, including Napoleon's albino mother, Emelyne Banteyineza, 18, who sits in the shade next to her grandmother, Candide Ntawenganyira, who is black and estimates her age at "about 70".

Emelyne has seven siblings, including one other albino. Candide, whose own parents were black, says she puzzled for a while about the sudden emergence of albinism in the family, then decided "it's God's will" and dismissed the issue.
Candide, whose Kirundi name translates as "I have no one to take my worries to", is clearly too delighted with her new great-grandson to think much about the shadowy albino-hunters - working for big-money buyers in Tanzania, most Burundians believe - who have killed 12 people in Burundi and caused the displacement of many others in several provinces.

To read more go to: http://www.alertnet.org/thenews/fromthefield/218536/125672168994.htm

Comments

Popular posts from this blog

Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for

The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.

Help for one of our newest HPS friends

As many of you know, I have a google alert set up for all sorts of key terms like albinism, pulmonary fibrosis etc. The following was posted on the blog of a friend of Melanie's. Melanie is one of our newest members of the Hermansky-Pudlak Syndrome family. Unfortunately, like so many she didn't know she had HPS and the lung disease sort of snuck up on her. Melanie will be 26 years old next week. Perhaps some of us would like to contribute to the fund set up to help her and her family for her birthday. Here's the post: Melanie Hernandez, beloved sister and daughter to Pete, Monique, Cookie, and Bugie, has been diagnosed with Pulmonary Fibrosis, a lung disease occurring in people with Hermansky-Pudlak Syndrome, a very rare disease.Hermansky-Pudlak Syndrome (“HPS”) is a genetic metabolic disorder. It is characterized by: Albinism, Vision Impairment, Bleeding Disorder, Inflammatory Bowel Disease and Lung Disease – Pulmonary Fibrosis. With the family’s research and the recollect