Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Sunday, September 13, 2009
Update on Maria
Thanks for all the prayers for Maria. She's home and taking medicine and recovering. She's trying to get a timely appointment with the transplant coordinator to start the ball rolling. They want to put her off for several months. The thing is, it takes a while to be evaluated for a lung transplant. Let's pray she's able to get in sooner.