Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Friday, September 11, 2009
Hundred People Search Update
This week we added another person to the HPS patient registry. That puts us at 40 more HPS'ers to find in this year's Hundred People Search (HPS) challenge. Keep up the great work everyone - we want to make sure no one goes undiagnosed or is left behind as someday better treatments are found.