Tuesday, September 15, 2009

20/20 to deal with albinism

Below is updated information about the upcoming TV show on albinsm. Those of you very involved in the albinism community are likely already aware of this as it's been EVERYWHERE! But, just in case, I thought I'd pass this along.

As far as we know, the show will not feature Hermansky-Pudlak Syndrome (HPS). It's a long story. I think the show will focus mainly on Tanzania with a few shots from some NOAH events. The situation in Tanzania is truly beyond horrible and needs the coverage, so I'm okay with it. I am hopeful, however, that many of you in the HPS community will use any online or family or friend conversations that result from this segment to discuss HPS. I know not everyone is comfortable with that, and there are some good reasons why - but on the other hand, if some of us are not vocal about HPS, no one will ever know. No one is going to advocate for us but us.

ABC has decided to move the feature on albinism (including the segment about the murders in Tanzania) over to their 20/20 news journal http://abcnews. go.com/2020.
As a result, the program will not show this Wednesday, September 16 as scheduled.
We do not yet know the date on which the feature on albinism will be aired on 20/20, however we will contact you as soon as this is confirmed.
Please keep your eye on the Under The Same Sun website.
New press stories and updates about Peter's work in Tanzania are being frequently added.
www.underthesamesun .com
Yours sincerely,

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