Monday, August 24, 2009

NOAH Adult Weekend in Orlando

There is a group of HPS'ers that are planning to attend the NOAH Adult weekend in Orlando. This is a NOAH event, not an HPS event, but Donna Appell is planning to be there. It's a great opportunity to not only get together with the general albinism community and socialize, but also to see old HPS friends in the Florida area as well. Here are the details, but check out the events page at

NOAH Adult Weekend 2009
Registration Information Available
Friday, September 25 — Sunday, September 27, 2009
Fellowship, presentations, discussion groups, and field trips for adults! Adult weekend is a time when adults with albinism can share their experiences, ask questions and not feel like they are under a microscope.

Where: Holiday Inn and Suites8214 Universal Blvd. Orlando, FL 32819Cost: $82.00/night + tax (currently 12.5%)

Registration Costs: NOAH members’ discount registration fee is $30 per person. Non-members pay $40.

The price includes: Breakfast (if staying at event hotel) · Lunch Saturday · Educational Sessions Saturday

Individual expenses: · Dutch treat meals (self-pay) · Hotel & travel expenses
Ground Transportation: b b Mears Shuttle, $18.00 One Way or $29.00 Round Trip. To make a reservation visit or (407) 423-5566 Make sure you select the correct Holiday Inn: Holiday Inn Convention Center, 8214 Universal Blvd. Taxi: One way taxi fare is approximately $45.00.

Registration must be received by Sept. 11, 2009
Download Registration Form
Tentative Schedule

Friday 6:30pm Dinner at Tony Roma’s Come share a meal with other adults with albinism and taste some of Tony Roma’s world famous ribs or other grilled selections
Saturday8:30am Breakfast (Complimentary continental breakfast for guests of Holiday Inn)
10:00 – 11:00am National Institutes of Health Albinism Protocol - Dr. David Adams, lead researcher, will describe a natural history study currently underway at NIH. Learn how you could participate in clinical research to better understand oculocutaneous albinism. Mike McGowan will share his experiences as a research subject.
11:15am – 12:30pm Best Solutions This interactive presentation allows you to be both speaker and listener. Share with others how you have overcome the low vision associated with albinism to accomplish everyday tasks. Maybe you will pick up a few tricks to”see” better.
12:30 – 2:00pm Lunch Executive Deli Lunch Buffet
2:00 – 2:45pm Discussion Groups Share your story and ask those burning questions.
3:00 – 4:15pmNOAH Today and Tomorrow NOAH president Mike McGowan will bring you up to date on the latest in NOAH and the albinism community. Then Lee Laughlin, NOAH founder will lead the group through a discussion about what NOAH can do for adults with albinism and what adults can do for NOAH. Topics will include suggestions for activities and presentations at the next NOAH national conference, what events can NOAH plan to bring adults with the condition together and ideas for a book by and for adults with albinism.
7:00pm Dinner at Margaritaville Join us as we change our attitudes and latitudes and all become parrotheads for a night at Jimmy Buffet’s Margaritaville on the Universal City Walk
Sunday morning survivors’ breakfast for those not dashing to the airport!

RESERVE YOUR ROOM DIRECTLY WITH THE HOLIDAY INN BEFORE SEPT 3rd! Call 800.936.9417 and mention you’re with NOAH to receive the special rate of $82* per night single/double occupancy (*plus applicable taxes)

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