Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Monday, August 31, 2009
Hundred People Search update
Here's the latest Hundred People Search update - we added one new person to the HPS registry last week. That puts us at 41 to go on the hundred people search. Thanks to the Puerto Rico conference, we are now ahead of where we were at the same time last year. Keep up the great work everyone, and don't forget - let me know when you do anything to help spread the word about HPS!