Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Saturday, August 08, 2009
Hundred People Search update
I have to say, this has been a very tough week in HPSland and I'll blog more about that later. I need to get to bed as tomorrow in the Kansas City NOAH event! Yahoo!!! I did want to let you know that this week we added two new HPS'ers to the patient registry, putting us at 87 to go on this year's Hundred People Search challenge (HPS).