Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Tuesday, August 18, 2009
Another act of outreach from North Carolina
Karen T., our regional coordinator in North Carolina, was telling me this evening that she had given HPS brochures to the various specialists her husband had to see recently. Although she wasn't there for herself, you never know when one of these docs. might encounter a patient with HPS. Just goes to show - every new doctor could be a potential act of outreach.