Sunday, August 16, 2009
Acts of outreach from North Carolina
Silvia, an HPS mom from North Carolina, reports that she shared HPS brochures with her daughter's vision teacher. The vision teacher reported that she has several other students with ocular albinism of Puerto Rican background. Since we know that about five of every six people on Puerto Rican background with albinism have HPS type 1 or 3, the likelihood some of those other kids also have HPS is pretty high. Hopefully their families will follow through with HPS testing. If not, at least they are now aware of the syndrome should any complications develop. Silva also shared brochures with her local doctor's office. Way to go!!! That's how we'll get the word out!