We HPS'ers would also like to thank the Albinism Fellowship of Australia. They also have a conference coming up and have agreed to distribute HPS brochures. We so much appreciate the support. I know we do have several HPS families in Australia, and I thiink two Chediak-Higashi families. They are so far away it's hard for them to participate in the Network, but they are there - and as we've learned over the years, where's there's one HPS'er, there are always others. Grin!
Again, thanks so much for the support.
I have to add on a personal note that Kim with the Fellowship is also one of the moderators of the albinism international yahoo group. She has always been a great friend and supporter of ours. We really do appreciate it.
Here's the information on the conference - I know I have at least two regular blog readers in Australia, so I wanted to share the details as well.
“Shining the Light on Albinism: Brisbane 2009 AFA Conference”
PDF version for printing
12-13 September, 2009
Chifley at Lennons Hotel 66 Queen St, Brisbane
Queensland - Australia
For accommodation bookings please contact the hotel on 07 3222 3222
Morning/Afternoon tea & Lunch included in registration costCentrally located in Queen Street MallNew Expanded ProgramFeaturing:
- Interactive teaching workshops.- Two conference rooms running simultaneous speaker sessions.- Poster Session; Vendor Stands; Youth Program.- Display of VI sporting options.
AFA are happy to report that the conference will be opened by: The Honourable Annastacia Palaszczuk MP, Minister for Disability Services and Multicultural Affairs.
Program may change at any time, without notice - Draft Program as at 17 June 2009 (PDF)
Associate Professor Glen Gole
Head, Dept. of Ophthalmology, Royal Children's Hospital, Eye Clinic, Brisbane.
Paediatric Ophthalmologist (Private practice), Wesley Medical Centre, Brisbane.
"On the Road Again ..... my 25 years with the Paediatric Low Vision Clinic"
State-wide Education Adviser: Vision Impairment; Disability Services Support Unit; Dept. of Education, Training & the Arts - Retired.
Founder of Paediatric Low Vision Clinic.
Link to bio in full
Professor Michael G. Kimlin PhD
Director, AusSun Research Lab/
Principal Research Fellow and The Cancer Council Queensland Senior Research Fellow
AusSun Research Lab (Australian Sun and Health Research Lab).
Institute of Health and Biomedical Innovation
Queensland University of Technology
Self Esteem "Absolutely Albinism"
- Robert Meredith Mindsets and Capabilities Lead Facilitator
Robert has over 25 years experience in leadership development, change management, life skills training, personal and professional development training and body work training. He is the Director of People Knowhow Life Skills Training and former manager/leader of Himalayan expeditions through his company Conscious Trekking. Robert has extensive Australian and overseas experience in the delivery of: Leadership Development for senior executives and top teams; Change Management and Organisational Change.
Robert is a dynamic and motivational presenter who is able to engage with others through empathy and emotional awareness. He aims to share techniques enabling people to understand their emotional nature, allowing personal evolution and healthy self expression.
Link to bio in full
- Nikki Murray
Current Role: Statewide Advisory Visiting Teacher- Orientation and Mobility
Based at Disability Services Support Unit, Brisbane, Queensland
I have worked in the field of vision impairment and education since 1991, initially as an Advisory Visiting Teacher in Central Queensland and in the Pine Rivers & Redcliffe areas. I studied for my Masters of Rehabilitation in Orientation and Mobility in 1999 and have worked in that area ever since. I have had the opportunity to deliver lectures on O&M service delivery for children at Griffith University in Queensland and Renwick University in NSW.
My job offers me the opportunity to travel across Queensland visiting schools, students with vision impairment and their families to provide information and support in the area of Orientation and Mobility.
- Hellen Riley
Hellen comes from a background in Education, teaching in England for 20 years before migrating to South Australia. Her interest in vision impairment began when children were first integrated into their local schools in the early 1980s. She later joined the VI Support Service in Staffordshire. Hellen studied for her VI qualifications through Birmingham University, achieving her Master of Education in 1996.
In South Australia, Hellen worked as a Visiting Teacher for students with vision impairment and was co-ordinator of the Visiting Teacher Service for six years, 1997 - 2002. Hellen continues to enjoy working with children who have vision impairment in a Family Support Service role with CanDo4Kids at Townsend House in Adelaide.
- Self Esteem.
- Orientation & Mobility.
Exhibitors and Sponsors
We welcome Sponsors and Exhibitors as a valued component of the SHINING THE LIGHT ON ALBINISM: BRISBANE 2009 AFA CONFERENCE, see below.
2 Exhibitors are confirmed - Only 3 vendor display booths are still available, so be sure to get in early! To find out more about how you can be involved in this unique event, please contact Kim Gillespie (see below).
$160 AFA Members, $190 non-membersEarly Bird specials available $30 Discount - - - *** Early bird specials end at end of July!! ***
Conference Registration Form (Book NOW as numbers are limited)
* Conference Registration Form (PDF)
* Conference Registration Form (Word document)
Conference Childcare Registration Form - For children 12 and under
* Conference Childcare Registration Form (PDF)
* Conference Childcare Registration Form (Word document)
If you would like to suggest a topic or speaker (yourself included) or would like to volunteer to help organise the next conference - please contact:
Kim Gillespie (President)Email: email@example.comPhone: 0425 229 799