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Film crew

I think I must have been having some sort of problem with my camera - almost all of my pics - even the ones in good light - turned out blurry. Thank God for Frankie, Joe Sipe and Tommy for being such great photographers because most of my shots didn't come out well.

At this conference we had no fewer than three film crews. The one pictured here is Joe. He's from the Stanford Center for Bioethics. This group has followed Ashley and me for more than a year now. They've gone with us to NIH and have interviewed Donna and Dr. Gahl extensively. They have made a short film for use in medical schools - great exposure for HPS - and are now shooting a longer documentary that we all hope will have national broadcast.

There was also a producer at this year's conference mostly doing background research for a peice on albinism. She was from 20/20 Primetime. And lastly, we had a teenager with HPS who is studying film working on his own project. We actually had to have a press room this year at conference - a very happy issue to have!!!!!!
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