Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Wednesday, February 11, 2009
HPS Network presents at Brooklyn Hospital
Donna Appell, President and Founder of the Hermansky-Pudlak Syndrome Network, will be making a presentation about the syndrome at Brooklyn Hospital tomorrow at noon. She will be presenting to the pulmonary department during lunch. Everyone please say a prayer for Donna tomorrow.