Stories from the battle to cure Hermansky-Pudlak Syndrome, and other observations about every day life
Saturday, February 21, 2009
Bowling for NOAH
This afternoon I was happy as a clam. We had our annual bowling event for NOAH, and I got spend time with these great kids and their parents. Aren't they a bunch of cuties? Now, trying to get everyone to pose for a picture is another story. It's like herding cats.
This was a general albinism event. None of these kids are HPS'ers. They are just precious!