Registration is open for the New York Hermansky-Pudlak Syndrome family conference

Registration is now open for the Hermansky-Pudlak Syndrome family conference. Those that are registered with the HPS Network were mailed registration forms today. You should get them sometime this week. Please, please register in advance if you're planning to come. While we are always happy to welcome the last-minute crowd, our last-minute crowd is typically most of the attendees. This can make conference planning very difficult.

It helps us to plan for catering and childcare and the room seating etc. if we know you're coming. Even if you're still saving your pennies for conference, if you plan to attend at least fill out the form so we have you in our head count.

Also, if you're flying to New York and you need to be picked up at the airport, we need to know this in advance. We have transportation volunteers that take tine away from their jobs and lives to help us, so we want to be organized and now waste any of their time. We need to plan what size vehicles will be needed for various airport runs.

Thanks so much for your help!!!!

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Living on the frontlines

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