Friday, January 23, 2009

Hermansky-Pudlak Syndrome Network attends New York meeting of the American Thoracic Society

This weekend Donna, and I think maybe Marie, are off to attend the New York chapter meeting of the American Thoracic Society. They'll man a table there to talk to this collection of lung doctors and researchers about Hermansky-Pudlak Syndrome and pulmonary fibrosis. So many people never think to make a link between albinism and pulmonary fibrosis. Because New York has such a large Puerto Rican population, this is an especially strategic group of doctors and researchers to reach out to. Everyone please say a few extra prayers for them this weekend.

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