Skip to main content

In memory of Roberto

I am posting this from Carmen. She knew Roberto much better than I did, so it's fitting that she be the one to honor his life.

From Carmen:


This note is to say goodbye to a good friend, Roberto Vasquez.


About 10 months ago I started to be a phone pal for my friend Roberto Vasquez. It started as a weekly phone call to cheer him up while he waited for his lung transplant. OH boy, was I wrong!! Pretty soon, he was my weekly call to cheer me up!!


He moved to NY with his sister after learning that he was in need of a lung transplant. He was optimistic and positive and always found reasons to state that he was lucky as he knew there were others sicker than him. He was always looking at the good in life and he laughed a lot, even on the bad days. He would have a bit of a pity party and end up laughing at the end. He always joked about how come we could not have lungs from a pig - somehow every little problem in the world could be resolved by pigs. (grin)


Well, Roberto decided half way that he had enough and that he wanted to go back home and forget the transplant. For a while he did not tell me. I guess he did not want to disappoint me. Silly goose! Yes his decision made me sad, but at the same time I respected it, as I knew it was not easy for him. You see, Roberto had very little family in NY. He never learned to read or write and knew very little English. He had to travel from New Haven, NY to Manhattan on the dial-a-ride, for every single appointment, test, class or meeting and sometimes those trips lasted a whole day. He was on O2, which made traveling difficult, especially to be on the dial-a -ride for hours, being scared that your oxygen is going to run out. I knew he tried his best to get on that transplant list.


In my eyes he was a fighter, and he always will be. I knew that he was just choosing to battle a different fight.


I am so sad that he didn’t get to go back to his little island and spent time with his mom and his family. I am sad that he did not get to celebrate his 47Th birthday on the 6th of this month. I am sad I did not get to say good bye. I am comforted by the thoughts that he is resting and in peace. I asked God to grant me half of his bravery. I am grateful I got to be his friend. I am not saying good bye, I am saying what I would tell you at the end of every phone call: Te hablo prontito, mijo ( I talk to you soon, mijo)

Comments

Popular posts from this blog

Ratner's Cheesecake

Here's another recipe from Toby! Thanks Toby......and I'll get the others posted soon! Ratner's Cheesecake and plain cookies Ratner's was a Jewish dairy restaurant in the lower East Side of Manhattan. This recipe, from my disintegrating, no longer in print Ratner's cookbook, is the closest I've ever gotten to reproducing the rich, heavy cheesecake my mother made when I was a kid. It's worth the time it takes to prepare and every last calorie. Dough Can be prepared in advance. Makes enough for two cakes. Can be frozen or used to make cookies – see recipe below. 1 cup sugar 1 teaspoon vanilla extract 1 cup shortening 1 teaspoon lemon extract 1 cup butter 2 eggs 3 cups sifted cake flour ½ teaspoon salt 2 cups all purpose flour 1 teaspoon baking powder 1. In a bowl, combine all ingredients with hands. Refrigerate 3 -4 hours, or preferably overnight. Filling (for

The next generation with Hermansky-Pudlak Syndrome

I'm so behind on posting about the trip to Puerto Rico. Since the episode of Mystery Diagnosis on Hermansky-Pudlak Syndrome ran right after we got home, it's been a little busy. These, however, are my favorite pictures from Puerto Rico. I know, not pretty senery etc - but these little guys and gals inspire me. They are the next generation of folks with HPS, and if we keep up the hard work, they will live better lives because of it. They motivate me.

Help for one of our newest HPS friends

As many of you know, I have a google alert set up for all sorts of key terms like albinism, pulmonary fibrosis etc. The following was posted on the blog of a friend of Melanie's. Melanie is one of our newest members of the Hermansky-Pudlak Syndrome family. Unfortunately, like so many she didn't know she had HPS and the lung disease sort of snuck up on her. Melanie will be 26 years old next week. Perhaps some of us would like to contribute to the fund set up to help her and her family for her birthday. Here's the post: Melanie Hernandez, beloved sister and daughter to Pete, Monique, Cookie, and Bugie, has been diagnosed with Pulmonary Fibrosis, a lung disease occurring in people with Hermansky-Pudlak Syndrome, a very rare disease.Hermansky-Pudlak Syndrome (“HPS”) is a genetic metabolic disorder. It is characterized by: Albinism, Vision Impairment, Bleeding Disorder, Inflammatory Bowel Disease and Lung Disease – Pulmonary Fibrosis. With the family’s research and the recollect