The 100 People Search challenge continues and this week we added one new family to our HPS family. That means that we've got 44 HPS'ers left to identify to meet our challenge. Once again, this was a case of one person informally telling another about Hermansky-Pudlak Syndrome and the Network.
It does help not to be afraid to approach someone and ask them if they're aware of HPS. How many people might have never had a chance at the right health care or treatments only because those around them were too afraid to simply and politely just put it out there?